Hyderabad, May 1: After battling enemy troops on high altitudes of Kashmir to save his motherland, Manoj Kumar Sikdar, a Kargil War veteran, is now fighting another battle to save his only son.
Manoj's 7-year-old son, Mihir, is suffering with a terminal illness in a hospital in Hyderabad.
As per a report published in The News Minute, for the past ten months, doctors, nurses and medical staff have all been tending to this brave child and hoping for a miracle that will save him from a rare genetic disorder called Neurofibromatosis (Type 1) which causes chronic pain and growth of tumors along nerves in the skin, brain, and other parts of the body.
Mihir, despite battling with death greets everyone with a big smile on his face. He can't talk anymore after his trachea was removed to facilitate him in breathing. But he communicates with the help of his small drum and barely audible whispers.
Only one in 50,000 gets affected with this disorder and the person needs continuous medical attention. This disease is accompanied by several other complications and Manoj is doing every thing ever since his son was diagnosed with this disease.
"For the last ten months, I have seen my son fight against this disease and I wonder how he manages to smile even though he goes through so much pain," he was quoted as saying.
The 7-year-old boy is currently on ventilator support, paralyzed on one side and is also battling additional health complications like constricted blood vessels in brain, a spine disorder, bleeding in the brain and a urinary tract infection.
Having watched his putting up such a valiant struggle with life Manoj says, "I have learnt so much from him. I saw a lot of death during my spell on the Line of Control and thought I understood the value of life but when I see my son radiating so much positive energy despite his suffering, I understand that there is so much more to life. His spirit to keep fighting inspires me."
The family has pumped in all its money to save their child. Mihir was shifted to the ICU on April 9, 2014 and many months later, the parents have hit a hurdle. Until April 6, the expenditure for Mihir was covered under the Ex-Servicemen Central Health Scheme (ECHS) but it has expired since after 120 days of health care.
Earlier, the hospital was charging Rs 4,500 a day but after the insurance scheme expired since the scheme wasn't renewed they are being charged Rs 8,500/day.
With the bills going up, Mihir's parents have created a Facebook page, asking people to come forward and help their son and have even uploaded a video documenting his everyday struggle.
Currently, Mihir is battling for his life at Kim's Hospital Secunderabad. He needs Financial help and support from all of us. Please help him and his parents.